What’s Up With Catalight!

Ep. 10 - Vaccines Don't Cause Autism!

In an extremely topical episode, Dr. Peter Hotez, one of the world’s most preeminent experts on vaccines and Nobel Peace Prize nominee, joins host Lindsey Sneed to talk about the all too widespread and modern misconception that vaccines cause autism. While he’s saved hundreds of thousands of lives with the low-cost vaccines that he’s helped create over his illustrious career, Peter tells Lindsey that his recent work defending vaccines may ultimately prove to be as important as making the vaccines themselves.  
The father of a daughter with autism, Peter wrote the book “Vaccines Did Not Cause Rachel’s Autism” in 2018 – mixing his personal and professional life in a way that explains the causes of autism and how parents can be duped into simplistic fallacies in search of understanding. Modifying ‘tikkun olam,’ the Jewish concept of “repairing the world,” Peter says his own ‘science tikkun’ has become the meaningful framework of his life’s work – even when his life is being threatened by anti-vaxxers.  
Peter Hotez is a pediatrician, public health advocate, dean of the Baylor College School of Tropical Medicine and co-director of the Texas Center for Vaccine Development who’s appeared on CNN, MSNBC, BBC, Fox News, the New York Times, Washington Post, Wall Street Journal, USA Today and the Joe Rogan Experience. A nine-time author, Peter is finishing up his next book due out in the fall – a collaboration with famed geophysicist Michael Mann entitled “Science Under Siege,” an examination of the overlap between the attacks on climate science and biomedicine.   

Ep. 9 - Highways in the Brain

How do you explain someone’s brain? Dr. Liz Angoff does it through strength-based neurodiversity affirming approaches. A former school psychologist who noticed students shined when the environment fit, Liz made it her life’s work to ensure children with developmental disabilities understand that their brains aren’t broken – they’re just different. In finding that some practitioners struggled to explain autism and other diagnoses to children, she wrote two books to help: “The Brain Building Book” and “Brain Building 101.”
Host Lindsey Sneed found her “highway” metaphor most impactful: An idea that the brain is made up of highways (a person’s strengths) and road that’s under construction (challenges that a person can work on and improve).
In a What’s Up With Catalight! first, Lindsey and Liz talk in person about positive framing, ways diagnosticians and clinicians can shape the way children and their families understand a diagnosis, and how the highway metaphor can be used for any person to help them better understand themselves and others.
Specifically for parents, Dr. Angoff’s third book, “Our Brains: A Guide For Understanding What Neurodiversity Means For You,” is set to release this spring. Check out her website, www.explainingbrains.com, to order or for free resources, strategies and interactive tools that help caregivers.

Ep. 8 - Imagining a World Without Access Gaps: How AI is Transforming Autism Care

After his son’s autism diagnosis and undergoing the long wait times typical with the process, distinguished tech entrepreneur Amol Deshpande embarked on a new career – to build game-changing innovation for early childhood conditions, starting with autism. He has invested millions in supporting others in pursuit of better care. This week, he launched Frontera Health as the founder and CEO in the business of “impacting humans.” He talks with host Lindsey Sneed about how Frontera’s tools use AI and technology advances to transform precision in therapy and give clinics and clinicians tools to leverage their scarce skill set. 
After years of research and development built by leading computer vision researchers and clinicians, the company is set to release its groundbreaking, first-of-its-kind digital phenotyping platform in mental health. Providing hundreds of data points from interactions, the platform will aid clinicians during assessments and treatments, provide parents with key insights and bring precision of care to autism – all without natural human biases. Frontera's goal is to be non-incremental in its technological approach as it considers how to bring vast change to the field both in the data and workflow.  
Driven by his experience, Amol is dedicating his expertise as an entrepreneur and parent to tackle key problems that he deems solvable by supporting clinicians and empowering parents.
 

Ep. 7 - Dismantling of the Intact Mind

The “intact mind” is an old idea still common in discourse that inside every autistic child – even those with the most severe presentations – is a typical child with a high intellect waiting to be liberated. Author, University of Pennsylvania historian of medicine and mother of a 25-year-old profoundly autistic son, Dr. Amy Lutz joins to discuss her newest book, “Chasing the Intact Mind.” She and Lindsey talk about how the insidious idea of the intact mind gives false hope to parents while marginalizing individuals with profound autism and their caregivers at the greatest levels. Disability service systems are still being predicated on the idea rather than being designed to serve the full spectrum – including the different needs of people with legitimate intellectual disabilities. Intact mind related practices and movements like facilitated communication, “nothing about us without us” and anti-subminimum wage, are leaving the stories of those with profound autism untold and their needs unmet.

Ep. 6 - Dungeons, Dragons & Disabilities: The 'Autistic Rizz' of Lived Expertise (2 of 2)

Autistic self-advocate and dungeon master Peter Jung is back for part two of the Dungeons & Dragons series to talk with Lindsey about the importance of representation in social skills groups and elsewhere. Over the years, he’s found that autism social skill groups are far too often led by neurotypical people. While a leader with ‘lived experience’ is tremendously beneficial for autistic social group members who may not feel as comfortable being themselves around neurotypical people, he calls for more – ‘lived expertise.’ Someone with lived expertise, he says, is a person who has a sense of agency, knows how to utilize accommodations and, most importantly, employs “autistic rizz.” Whereas groups led by neurotypical people often take on a classroom setting with a misguided focus on correcting deficiencies, those with a charismatic autistic guide normalize behaviors in a fun way and create a safe space. In the case with Peter’s Dungeons & Dragons group, teens and young adults are taught teamwork, conflict resolution and myriad other social skills through the filter of a low-pressure fantasy game where it’s OK to make mistakes. Peter just had a paper published in the in Japanese Journal of Analog Role-Playing Game Studies about autistic accessibility in role playing games and his concept of ‘6 autism social advocacy skills.’ Check it out here: https://jarps.net/journal/article/view/58/111

Ep. 5 - Dungeons, Dragons & Disabilities: "Maximum Autism" (1 of 2)

By masking in fantasy, you can learn a lot about becoming your true self in reality.
Peter Jung’s games have been dubbed “maximum autism” and a young player once called him “the most reasonable adult” they know – two compliments Peter regards in high esteem. Peter is an autistic self-advocate who holds a master’s degree in educational psychology. He’s also a…Therapeutic Dungeon Master – as certified by Geek Therapeutics – who, for 11 years, has been running sessions of Dungeons & Dragons, a tabletop fantasy roleplaying game popular in “geek culture,” as social skills groups for people with autism in Washington state. He and host Lindsey Sneed, Ph.D., BCBA, talk in this first part of a two-part series about how games like D&D increase communication skills, self-advocacy, problem solving, assertiveness, confidence, pride, resilience, flexibility, ethics and relationship building all while normalizing autistic traits and creating a greater sense of community.
Check out Peter’s website, www.rollforkindness.com, for more information. 

Ep. 4 - The Pursuit of 'Autistically Happy'

In the pursuit of wellbeing, we shouldn’t seek to make children less autistic – our mission should be to help them become autistically happy. Internationally renowned Belgian lecturer, researcher and author Peter Vermeulen, Ph.D., joins Lindsey to discuss his newest book, “What Really Works for Children with Autism.” The book takes a slightly more non-traditional angle in explaining that autism shouldn’t overshadow children’s needs. The need to be understood is universal for all humans; neurotypical caregivers can support autistic children by helping them draw a road map for life occurrences. Lindsey and Peter talk about predictability, consistency, planning and how making small changes can have negative or positive impacts. In 2019, Peter received the Passwerk Lifetime Achievement Award for his more than 30 years of work in the field of autism. Published in August, “What Really Works for Children with Autism,” written with Kobe Vanroy, can be found here: https://www.amazon.com/What-Really-Works-Children-Autism/dp/1957984961

Ep. 3 - Diverse Approaches to Autism Intervention

Considering the heterogeneity of people with autism, it’s no surprise that outcome research and treatment dosage needs vary widely from person to person. Experts need to think more creatively about how to provide evidence-based intervention. Individualized care based on the needs of the unique person is crucial in the field of applied behavior analysis. Guest Dr. Cynthia Anderson, child psychologist and senior vice president of applied behavior analysis at the May Institute, talks about her soon to be published research combines comprehensive behavioral interventions with a modular perspective. The treatment, which she’s calling Modular Approach for Young Autistic Children (MAYAC), is meant to be a lower dose, family-centered approach focusing on the specific needs of a child and the goals most important to their parents instead of attempting to address the vast array of all behaviors. Together, she and host Dr. Lindsey Sneed discuss dosage effect, outcomes and promoting positive care. 

Ep. 2 - The End of One-Size-Fits-All: Individualized Autism Care and Wellbeing (2 of 2)

Boundaries, rules and decision making can be a minefield. Brian “The Bearded Behaviorist” Middleton, M.Ed., BCBA, is back for part 2 of the conversation about personalized-care and meeting the needs of individuals. He and host Lindsey Sneed  Ph.D., BCBA,  discuss how traditional, one-size-fits-all paraprofessional ABA is rigid, focused on the easily observable, and can be limited. An interesting discussion of behavior analysis and stimulus follows, concluding with Brian’s take on pathological demand avoidance (PDA) and a report from Lindsey that training behavioralists in Catalight’s Compass Behavioral model – a program that focuses on improving organization, planning, social skills and regulating emotions – has demonstrated enhanced wellbeing among clients. In the planning for the podcast, Lindsey and Brian discovered they’re from the same small town in Northern California. They share memories of their hometown.

Ep. 1 - Beyond Behavior: Measuring Quality of Life in Autism (1 of 2)

Is lying good? Are rules meant to be broken? Host Lindsey Sneed, Ph.D., BCBA, is joined by Brian "The Bearded Behaviorist" Middleton, M.Ed., BCBA – an autistic adult, professional speaker, behavior scientist and advocate for disability rights – in part one of a two part episode to discuss the importance of individualized care for people with autism and other developmental disabilities. They emphasize the need to move away from a traditional one-size-fits-all approach to care in favor of striving for greater wellbeing while highlighting the role of parents/caregivers and the challenges they face. In an episode full of real-life stories, Brian talks about the concept of boundaries and rules while empowering the individual –  prompting discussions about the importance of independence, autonomy, complex thinking and critical skills.